Neurofibromatosis (NF) Awareness Month ProclamationPROCLAMATION
VILLAGE OF NORTH PALM EEACH
OFFICE OF THE MAYOR
NEUROFIBROMATOSIS (NF) AWARENESS MONTH
WHEREAS, NF causes tumors to grow on nerves anywhere in the body, bone and skin
tumors, bone deformities such as spine scoliosis; leg bowing or twisting, cafe au lait spots on the
skin, deafness, blindness; learning disabilities; debilitating pain, heart defects and even death; and
WHEREAS, NF is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy,
Tay Sachs and Huntington's Disease combined; and
WHEREAS, NF can appear in any family and is worldwide in distribution, affects both
sexes equally and has no particular racial or ethnic distribution; and 85% of cases are sporadic
(no previous family history) and 15% are inherited; and
WHEREAS, While over 120,000 Americans have NF and one of every 3,000 newborns
will develop the disorder, is still is relatively unknown to the public and much remains to be
done to raise awareness of NF's devastating effects and the need for funding for research to
prevent, treat and cure NF;
WHEREAS, The Children's Tumor Foundation (www.ctforg, 800-323-7938) leads the
efforts to fund critical research aimed at finding the causes of the disorder and developing
treatments and a cure, and to provide support to people and families affected by NF; and
WHEREAS, NF research benefits an additional 100 million Americans (i.e. 65 million
with cancer and 35 million with learning disabilities; and
WHEREAS, The Children's Tumor Foundation is observing May as National
Neurofibromatosis (NF) Awareness Month nationally to inform the public about this common
genetic disorder;
NOW, THEREFORE, I, Darryl C. Aubrey, by virtue ofthe authority vested in me as Mayor
of the Village of North Palm Beach, do hereby proclaim May 2011 as
NEUROFIBROMATOSIS (NF) AWARENESS MONTH
in the Village of North Palm Beach, Florida, and urge our citizens to join the Children's Tumor
Foundation's effort to increase awareness ofthe importance of finding a treatment and a cure to NF.
IN WITNESS WHEREOF, I have hereunto set my hand and caused the Seal of the Village
ofNorth Palm Beach to be affixed this 4th day of May, 2011.
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